Family of baby Charlie Gard release poignant new photos for Mother’s Day… story in the DAILY MAIL
The mother of desperately ill baby Charlie Gard says she is terrified her first Mother’s Day will be her last.
Connie Yates said: ‘Mother’s Day is so poignant and I can’t imagine my life without Charlie in it.
‘The day Charlie was born was the best day of my life. I always heard the phrase ‘there is no love like a mothers love’ and it’s so true, I will do absolutely anything for Charlie, anything.’
Doctors at Great Ormond St Hospital have said there is no accepted cure for the seven month old baby boy only the 16th person in the world to suffer a rare form of mitochondrial depletion syndrome which causes progressive muscle and organ weakness.
At a High Court hearing last month they said it would be kinder to allow Charlie to die.
But yesterday Connie, 31, said: ‘‘Sitting in the court room was one of the worst days of my life. I remember turning to my solicitor and asking “Will I still be a mummy on Mother’s Day?” Now that day is here I am terrified that my first Mother’s Day could also be my last.’
She and partner Chris Gard are battling to take their son to the United States where a doctors is willing to try new drugs. But first they must convince the High Court there is a chance it might work at a hearing on April 3.
As they release a poignant new photo of their son Charlie on life support but stable and ‘thriving’ Connie said: ‘I loved Charlie as soon as I knew I was expecting him. Pregnancy terrified me but as soon as Charlie was growing inside me he made me strong and that strength and love has only grown with time.
‘My whole life I’d dreamt of being a mummy, I have always loved babies and children and I was finally blessed to be having my own. Becoming a mother – giving birth to Charlie and finally holding him in my arms – it was even better than I imagined it’d be.
‘Now I want to hold his warm hand forever and feel his heart beating under his chest.’
Charlie was born on August 4 and admitted to Great Ormond Street Hospital for Children in London in October where he was later diagnosed with the syndrome.
Connie, a carer, and Chris, 32, a postman from Bedfont, south west London, are desperately raising money to foot the £1.2million medical bill to the US for treatment – and their son was this week granted his own passport in readiness to go.
But although their fund has soared to over £400,000 in just a fortnight, they are still £800,000 short of the amount needed.
Chris said: said: ‘We are bowled over by the public’s generosity. But we are extremely worried we won’t raise the total needed to save Charlie.’
In a statement the hospital said: In a statement the hospital said: ‘Charlie has a very rare and complex disease, for which there is no accepted cure.
‘We have tried to give him the best chance of survival. But his condition has continued to deteriorate and we feel we have exhausted all proven treatment options. We appreciate how hugely distressing this is for his family.’
To donate go to: https://www.gofundme.com/please-help-to-save-charlies-life