Charlie Gard’s parents condemn Great Ormond St Hospital of ‘inhuman’ treatment of their son… story in the DAILY MAIL
Case affects every family in the UK
Rulings mean doctors can not only decide to withhold treatment but prevent a child from going to an alternative hospital
Lawyers are acting for free for the family because they believe law on parental rights must change
The parents of sick baby Charlie Gard, who is on life support at Great Ormond St hospital, have branded their treatment as ‘inhuman’.
Connie Yates and Chris Gard lost their appeal against a High Court ruling last month that their nine month old son, who has a rare genetic condition and is currently being kept alive on a ventilator at London’s Great Ormond St Hospital, should be allowed to ‘die with dignity.’
The hospital has agreed to continue life support for a short time. Within this time the legal team hope to refer the matter back to Court to prevent life support being withdrawn from Charlie. They then hope a hearing could be arranged at the Supreme Court by mid-June.
Speaking for the first time since losing the appeal, Miss Yates said: ‘Chris and I were devastated that we lost. But we are as determined as ever to give our son the chance of having treatment that could save his life.
‘If the decision is not reversed by the Supreme Court then we will take it all the way to the European Court of Human Rights in Strasbourg.’
Charlie has mitochondrial depletion syndrome, which saps energy from his muscles and brain. Doctors at Great Ormond St Hospital claim he cannot see, hear, move, or make any sound.
They say it is ‘positively unethical’ to keep him on life support any longer, his ventilator should be removed and that Charlie should just receive palliative care.
But Connie 31, a carer and Chris, 32, a postman, from Bedfont, west London, have fought to give him pioneering treatment in the US, which they say could save his life and would not cause him any harm. Their plight prompted a flood of support from the public which in a fund raising appeal donated more than £1.3million for nucleoside therapy.
Couple are hoping the UK’s highest Supreme Court will overturn the ruling but if not they and their lawyers plan to go to the European Court of Human Rights.
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