Victoria Derbyshire show: All my children will die before their late teens…
After appearing over two pages of the Sunday Mirror, on Mail Online and Sun Online via Featureworld, Lisa Senior was invited onto BBC2’s Victoria Derbyshire show.
Lisa’s story is truly tragic. All three of her children have been diagnosed with a rare type of mitochondrial disease which means they are unlikely to live much beyond the age of 17.
When Lisa came to me, her story had already appeared in a women’s magazine after going directly to them. But she wanted further publicity to help fund research into finding a cure for this cruel hereditary condition.
I placed her story in the Sunday Mirror and was subsequently able to place it with other online news websites. At the same time I ensured that a link to Lisa’s Go Fund page was put on each story.
Lisa told interviewer Joanna Gosling how her eldest son Callum was first diagnosed when teachers noticed he had difficulty catching a ball. Tests then revealed a rare type of Mitochondrial disease which has been inherited from Lisa who is a carrier.
Lisa struggled on the programme with her emotions as she related how her two other children, Jack, 13, and Maycee, four, have since been diagnosed with the same life-limiting illness.
Devastatingly the children will not live much longer than their late teens. Lisa told the programme she is not coping with the realisation she will lose her children.
She tearfully told how she can hardly bear to think how her beautiful children will die in future. ‘There is no future because there is no cure for this disease,’ she said, ‘I want people to know what this is doing to families and children. I still talk to people who’ve never heard of it before. That’s how devastating it is.’
This is why Lisa is telling her story – to raise awareness and increase funding in the hope that eventually a cure will be found.
Lisa’s story is now due to appear in a women’s weekly magazine and Featureworld will be following their progress.
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