Charlie Gard’s story makes headlines around the world as the Pope and US President reach out…
When the parents of Charlie Gard came to me to help them get their story out about their son I always thought it would make the front pages.
But even I could not have imagined how the story of their little boy could garner so much support from around the world.
Their story has appeared on the front pages of the national press in the UK but also all over the world.
Whether Charlie, who has a rare mitochondrial condition, should have experimental treatment in the US or be allowed to ‘die with dignity’ as Great Ormond St doctors feel is best, has been the subject of massive debates.
Today I accompanied Connie to ITV’s Good Morning Britain studios where she eloquently explained why she and partner Chris believe their son should be given the opportunity to be given nucleoside therapy.
Connie and Chris’s incredible battle to get the treatment they believe will help their son is now set to continue as in the light of new evidence that the proposed treatment stands a much greater chance of success than it was believed, there will be a new High Court hearing.
Having been with the parents since November last year – shortly after Charlie was first admitted to hospital – I have to say no one could be more determined, more dogged and more passionate than they are.
They also have an extraordinarily close and supportive wider family.
There is no way any of them would continue to fight for Charlie if they did not firmly believe that Charlie was suffering, in pain or that the nucleoside treatment could possibly cause him harm.
If you need help with a story about your child please contact me in confidence for advice >>